Okay, we had a better day today. Glad I didn't have to spend my birthday on the brink of tears all day like I did yesterday!
When Keith and I arrived the kidney doctor was in the room examining Etta. She spoke to me for a while and basically said that she believes that Etta is on the mend. There are some numbers that are still high, but she thinks that they will peak and go back down again soon. She says her kidneys look good on ultrasound and she sounded very positive.
Just as she was walking out, the cardio tech walked in to do the Echo. I noted at that time that Etta's color looked really good and that her O2 saturation levels were 97-100%. She was still on 100% oxygen so that was keeping her stabilized.
Soon after the ultrasound, the doctors made rounds and we talked about her and I made better sense of what was going on with her heart. So, let me go back and add some more to my explaination of what's going on with her heart/lungs. When they did that Echo yesterday they discoverd the PDA was still a little open AND that she has pulmonary hypertension which is causing the right ventricle in her heart to work overtime. Here is some info I got off of a website (http://www.healthsystem.virginia.edu/UVAHealth/peds_hrnewborn/pph.cfm)
"Persistent pulmonary hypertension (PPHN) is also known as persistent fetal circulation. In this condition, a newborn baby's circulation changes back to the circulation of a fetus, where much of the blood flow bypasses the lungs. The fetal circulation sends most of the blood supply away from the lungs through special connections in the heart and the large blood vessels. When a baby begins to breathe air at birth, this fetal circulation changes dramatically. The change in pressure in the lungs helps close the fetal connections and redirect the blood flow. Now blood is pumped to the lungs to help with the exchange of oxygen and carbon dioxide. When a baby has lowered oxygen levels or difficulty breathing at birth, these changes may not occur and the baby's circulation returns back to the fetal system with blood directed away from the lungs. The lung pressure stays high. That is why this condition is called persistent pulmonary hypertension."
So, basically, she has some vessels in her lungs that have not fully dialated and they are causing her right ventricle to pump harder to get the blood through. It turns out that the fact that her PDA is still open is a good thing because it helps relieve some of the pressure in her heart.
So, to treat this, they tried pushing Oxygen last night and this morning. They compared today's Echo with yesterday's and found that there wasn't really a change. But the oxygen WAS keeping her O2 sats at about 100%. So, the doctors have decided that the next step is to put her on Nitric Oxide ("laughing gas") which should help dialate the vessels in her lungs. Yesterday they told us that they might have to intibate her if nitric oxide was required, but today they decided that since she was stable with the oxygen and she breathes on her won, they wanted to just give the nitrous through her nasal cannula. WHEW! So they started her on that today and they are going to keep it on her for two days and then do the Echo again. They seem pretty hopeful that this treatment will do the trick and open up those passageways. So, I'm hopeful too!
We hope everyone had a great weekend! Keith heads back to work tomorrow, but I'll still be spending my days up at Vandy with Etta and my Mom. Once again, than you for all of you thoughts and good wishes!
Love,
Tiff, Keith, and Etta