Mommy thought she heard me laugh a couple of mornings ago, but tonight, while she was changing me into my pajamas and wiping my face, I definitely laughed at her!! She thought my little giggle was music to her ears!!!
Yesterday morning, Mommy pulled my ExerSaucer out of its box and built it for me. Mommy locked the seat before she put me in it so I couldn't spin around and she had to put a phonebook under my feet so they weren't dangling. I'm really still too little for it, but Mommy stuck me in it for about five minutes anyway.... And WOW! There was A LOT of stuff to look at!!!!!!!! I mostly gnawed on the rim of the seat, but I ogled at all of the bright colors. I even reached out and touched some of the stuff (I haven't really done this before). I can't wait until I'm big enough to sit in it on my own!
Because of the gas shortage (um, try mile-long lines at the few gas stations that even HAD gas!), Mommy and Daddy and I just stayed home all weekend! We visited with each other and went for walks around the neighborhood and watched football and Mommy and Daddy played a lot of Uno. Mommy wouldn't let Daddy play with all of his crazy (made up) rules, so Mommy actually won a few times! ;)
Daddy's working from home tomorrow because he doesn't have much gas in his car and he's waiting for the gas stations to get easier to get into.
It will be nice to have him near by... even if he is working the whole time!
We haven't really been up to much these days. Mommy and I try not to go anywhere unless we really need to... you know.. with the gas prices and all! (Plus, when we go out Mommy likes to spend money at Target and we've all decided it's best not to even go there if we can help it).
So, on Tuesday, Mommy and I went to Target! I know, I know... but we REALLY needed some stuff!
Wednesday, Ms. Amy, my EI teacher came to see me. She says my neck is getting stronger by the week! I rarely let it flop forward any more! Go me!
Also, on Wednesday evening, Mommy put me down for a nap for the first time in my crib in my nursery! It was the very first time I slept in there! Mommy was very adament about having me sleep on my back and I'm okay with that when it's night time. But, during the day, I would scream and scream. So, up until now, I've been napping with/on Mommy or in my swing.
Earlier in the week, Mommy saw me fall asleep on my tummy right in the middle of "tummy time". So, she decided that since I'm doing such a great job with my head/neck control, she wanted me to try and take a nap in my crib on my tummy. So, yesterday, just as I was falling asleep on Mommy's shoulder, she put me down in my crib for the first time (I sleep in a pack-n-play in Mommy and Daddy's room at night). And I SLEPT!! I slept for nearly an hour and a half all by myself in MY crib! Mommy (and Daddy after he got home from work) came in and checked on me about every five minutes until I woke up!! haha!
So, then today, Mommy put me down in my crib for ALL of my naps. I only took a few short 30-45 minute cat-naps, but I'll get use to it. Plus, maybe I'll sleep longer tonight!
Tomorrow, I'm going shopping with Grandmomma Mel! Wahoo!
I've been meaning to post this for three months now!!
WELCOME TO HOLLAND
Emily Perl Kingsley.
c1987 by Emily Perl Kingsley. All rights reserved
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
This morning I had a follow-up appointment with Dr. Aftab-Guy my Endocrinologist from the NICU. It was good to see her again. She's very sweet and I gave her lots of smiles. The thing is, I gave her those smiles BEFORE I found out she wanted a blood sample. I don't know if I would have let her have so many smiles if I had known what was going to be in store for me!
She said that she's not sure if I will have problems with my thyroid for my whole life or not and that we should know by the time I'm three years old. ACK!!! I have to keep taking this medicine for at least three more years?!?! It's YUCKY!
While we were there (before the horrors of the blood draw), they checked my weight! I have put on some more ounces! As of today, I weigh 9 lbs 6 oz and I'm 21 inches long! Look at me GROW!
After the nurses poked my tiny little vein, Mommy was kind enough to rescue me and slide me into my Peanut Shell. I was asleep by the time we got to the parking lot. All of that screaming REALLY wore me out!
Then, Mommy and I met Ms. Kathy for lunch at the Chinese restaurant across the street. I was still passed out when we got there and I slept (hard) through the whole meal. When the grown-ups were done eating, I decided to wake up (after Mommy talked me into it) so I could visit with Ms. Kathy. She held me and talked to me and I gave her a few smiles and apparently a wink! ;) We visited for a little longer until it was time for Ms Kathy to go back to work. Mommy and I sat in the air conditioned car and I had a bottle. Mommy got some cute pictures of me REALLY savoring this bottle.
When I finished eating, Mommy and I went to Wal-Mart to make a return and to check out their infant dept. I got more formula and some new clippies for my hair.
We took it easy after we got home. I talked to Daddy on the phone and told him how much I miss him and to hurry home. Then, Mommy had me do some "tummy time" and I started scooting from one end of the mat to the other. It's like a pre-army crawl. Mommy thought it was just great and has uploaded a video of me doing this. I started getting fussy, so she didn't push me too hard after that.
I think we're going to take it pretty easy tomorrow... pajama day, perhaps?
***By the way, if you would like to walk with us in October for the Buddy Walk you can register FOR FREE (so you can get a t-shirt) at http://www.firstgiving.com/DSAMT
Daddy left today on a trip to Massachusetts for a few days because of work. He'll be back on Wednesday. I'm going to miss him a lot while he's gone!
We are still VERY new to the Down syndrome community, but Mommy and Daddy really want to get involved. One of the first steps is to participate in the area's annual "Buddy Walk". It takes place on October 18th, 2008 at Centennial Park in Nashville.
"Sat, Oct 18, 9am – 1pm
Centennial Park - 2500 West End Ave. Nashville, TN
The Buddy Walk is a national awareness raising event that celebrates the lives of people with Down syndrome in our community. No matter your age or athletic ability, you'll enjoy this beautiful one-mile walk in Centennial Park. The Buddy Walk is a fun morning of games, music, crafts, food and prizes. Teams gather to raise funds to support DSAMT and to compete with each other in friendly competition. Admission is free, but advance registration is strongly recommended."
We are hoping that our family and friends will join us that day if they are able.
Mommy has set up a donation website for those of you who would like to sponser us. Our team name is "Etta's Entourage". The website accepts credit card donations and only takes a few minutes. You can find it at http://www.firstgiving.com/ettamay